All of your support makes a difference!
A huge thank you to everyone who supported us at the 2023 Tough Mudder events: 10km/20 obstacles (May) and 15km/30 obstacles (September), raising over £6,500 for FAST UK in their quest to find a cure for Angelman Syndrome!
We are proud to donate a percentage of our earnings to Fast UK, a remarkable charity dedicated to curing Angelman Syndrome.
FAST, is the Foundation for Angelman Syndrome Therapeutics and was founded in 2008 in the USA.
Today, it operates not only in the USA but also in Australia, Canada, France, Italy, Spain, and the UK, making it the largest non-governmental funder of Angelman Syndrome research. FAST takes its responsibility seriously, investing all financial donations wisely. With less than 7 percent of expenses dedicated to general and administrative costs, their noteworthy efficiency ensures that more funds are available to support critical research. Rather than simply writing cheques, FAST has set the research agenda for Angelman Syndrome by assembling a multidisciplinary team. Over two-dozen scientists from renowned research universities and pharmaceutical companies have united on a focused path toward finding a cure.
Supporters are encouraged to make financial donations, spread the word among friends and family members, and organize fundraising initiatives to help FAST cross the finish line. Their ultimate goal is to successfully complete this race by finding a cure.
Angelman Syndrome (AS) is a rare neurogenetic disorder that affects approximately one in 15,000 people – about 500,000 individuals worldwide. Children and adults with Angelman Syndrome typically have balance issues, motor impairment and debilitating seizures. Some individuals never walk. Most do not speak. Disrupted sleep cycles also can be a serious challenge to the individual and caretaker(s).
Individuals with Angelman Syndrome require continuous care and are unable to live independently. They have a normal life expectancy. This is life today for people living with Angelman syndrome, but hope is here.
Scientists believe that Angelman Syndrome has the greatest potential for being cured when compared to other neurogenetic disorders, and FAST (Foundation for Angelman Syndrome Therapeutics) has a plan well underway to achieve just that.
FAST UK join our global counterparts in the 2023 Cure Angelman Now (CAN) Campaign in order to raise much needed awareness as well as funds for FAST UK so that we can continue to fund the Natural History Study at Oxford University with a view to facilitate clinical trials in the UK.
Together, let’s make a positive impact and create a brighter future for those in need.
Jess and Daley raising some money in May for the charity at Tough Mudder.
Tough Mudder September 2023: 15km/30 obstacles done!